Wednesday, April 28, 2010

The Aliens are Trying to Return

Addi has a headache, again. Please pray. Not as bad, but at an "8" she said. She is on the new meds and Kim said they are knocking her out. Hopefully when she wakes up she will be okay. The relief was short-lived, but hopefully the new meds will help. She also saw the gastro doctor and she is going to have some stomach/gallbladder testing. She had to get up and go to the doctor, and she really wanted to sleep...but appointments are hard to get!

Tuesday, April 27, 2010

Aliens Have Returned Our Baby

I told someone that the past 104 days have been like aliens had abducted Addi and replaced her with a sad, sick child. Thankfully, she is back! Just as quick as it came on her, yesterday afternoon the headache went away. She also saw the new neurologist at UAB today, and according to Kim, he seems to be an answered prayer. We know that migraine is not a curable disease, but it is treatable and he said there were so many things that could be done, and it seems he is not afraid to do it, either. He is putting her on a preventative, one she took with no side effects, and he gave her prescriptions for strong medication if she even started to feel a headache. He said she might go long periods of time, and she might never have another episode of this magnitude, but there could very well be other headaches, etc. We will not borrow trouble, and we are thankful that we are pain free at the moment, but we feel such a thankfulness for a doctor and a plan!
To all of you, my thanks and love. We cannot even start to say how much we appreciate the prayers, cards, calls, and expressions of kindness. Keep Addi in your prayers!

Friday, April 16, 2010

Addi Update




I stated I was not going to post until I had a happy post, but I will do one brief entry. Addi will be going back to Children's at the first of the week for in-house treatment. This will consist of IV treatment, for one thing. She will also be seen by everyone who needs to see her during a consolidated period of time. We do feel better about Birmingham, at least today. If you try something and it does not work, at least you are trying, and that is all we can ask. We are not unrealistic. We know that some things don't work, and we can't fault that...but at least try! This child has suffered. Is she stressed...yes, but as the headache doctor said, stress is not what caused this, but stress is a side-efffect of this situation. About four weeks into this ordeal, the stress did set in, and that may have to be addressed along with the migraine situation. We are also hoping that the gastro doctor will go ahead and rule out any gallbladder issues. As many of you know, we have been plagued with bad gallbladders, and not just gallstones. The more I read, many people suffer with migraine as a side effect of gallbladder issues. So, while this might be an unlikely issue, it needs to be checked. She has an appointment in a week and a 1/2 with the gastro people, but maybe they will get it checked while in-house. So, please pray for Addi and all involved. Pray for her relief and pray that her life will be returned to her so that she can play ball and go to birthday parties and all the fun things she is missing. Also, send her a card if you have not. She looks forward to the mail each day. If you need the address, send me your e-mail and I will send it to you. I don't like posting it online.
Pray!


Tuesday, April 13, 2010

Hiatus

Until I can write a happy post, I think I will take a hiatus. I don't want to always be writing a downer post, and lately that is what it has been. Thanks for all the prayers for our precious Addi, and please keep them coming. Also, she likes to get cards so if you have a minute, send her one.

Friday, April 09, 2010

Is anyone listening, anyone?

Friday of another week and we are still sadly in headache mode. This has been a rough week for Addi. She is on increased meds and new meds. Too much drama for a seven year old who cries to be "normal". Reality is, none of us are normal and this is a bumpy path in her road of life and perhaps it will be the worse thing she ever has to go through. Kim has spent time trying to get an appointment at some of the renowned headache facilities and guess what, if you want to go you have to wait until July. Sounds like we are already enjoying socialized medicine, if you ask me.
Pray for us.